I am finding things a bit tough at the moment.
As you will know, Ed has for sometime now, taken on the burden of caring for his Dad and Mum. When I say caring for, it is not really the, looking after, feeding, dressing, nursing caring for - his Dad has been in hospital since early June and is being cared for by capable, competent nursing staff.. and his Mum is quite able to care for herself physically, but she is frail mentally. The demands she makes on Ed are, in themselves, not onerous. She does not ask of him anything. But she is gripped by this illness of Alzheimers that makes her do and say things that are not of her… it is the illness.
Whenever he is not working and is able to, Ed takes her to visit his Dad at the hospital. At the moment, there are strict rules about when you can visit and, unless you go between certain times of the evening in the week and afternoon and evening at the weekend, we are unable to visit. So each evening is taken up with collecting his Mum and taking her to the hospital to visit.
We have been waiting for what seems like for ever, for a place for him at a Nursing Home where they can care for him and where he will be able to have a bit more stimulation than lying in a hospital bed…..
My struggle is that I cannot visit him. No it is not that visiting is restricted. But I just find it so hard to see him, frail and confused, mixed up and not always in full control of his faculties. I just want to keep the picture of his smiling face in my mind and not haveit replaced by an image that haunts me, and alien person who is not the man that has been my father-in-law for the last 24 years and has been part of my life since I was 17.
And I am no better with my mother-in-law. She doesn’t really know who I am anymore. She knows that I exist. She has spoken to hubby about me. But when I have seen her the last few times, I am just another face, another one of the team of carers that come in and do things for her.. and again, I struggle.
And, so, what do I do…
I know that I SHOULD see them… but I dont.. and that makes me feel even worse.
So I do NOTHING.
But there is one thing I do.. at times like this.. and at lone moments..
And that is shed a few tears..
And I mourn a loss for something that I cannot control. That is out of our control. That has never been under our control… the theft of time.
And I grieve for my husband who will cry when he reads this… for he does not have the luxury of being able to drive his head very firmly in the sand like me….
He has to be strong. He has to be in control.
He has to be the one one that sits there whilst his mum and his dad sit together in a hospital room, each talking away about totally random and irrational matters that have little connection with reality, both talking to him, expecting answers. And he is supposed to know exactly what they are talking about and make a response.
He cannot chose not to visit. Choice is not an option. But visit he does, and you know what… I have never, ever heard him grumble or complain about it. Not once. Not ever. He is a truly wonderful man.
Things should improve a bit when FIL’s place in the home is sorted. At least he won’t be tied to restricted visiting times which will hopefully free up some evenings. We are going to try to get his Mum into the same home so that they can be back together again.. but this won’t be immediately but it is going to have happen sooner or later. There comes a time when enough really is enough, and as she is no longer able to make this decision herself, for her own safety and welfare, she cannot stay alone in the house for much longer. A tough decision. One not made lightly. But is has been made. It has to be done. And that will be one heck of a battle to overcome. But there is is.
Am I getting hard? Am I loosing my sensitivity? Am I getting selfish? Yes I probably am - but all I want is to see my husband relieved of this burden that I now feel, is getting to heavy to carry for much longer. And it is a burden that I should be helping him carry - share the load… and what do I do?
Nothing!
Nope - I am not handling this very well at all.